Join us on Sunday, November 5th for the third annual 5K run, walk, kids fun run, and motorcycle ride at Biddeford Middle School to raise money in our fight against Epilepsy.
Registration link below.
Henry is back at it again for another amazing year! This year’s event will mark exactly two years of Henry’s seizure free streak (fingers crossed and prayers said)! His medication recipe continues to work for him in keeping the seizures under control. We hope you can help him celebrate this victory and his continued fight! .
On December 28, 2020, while eating breakfast, Henry had an eight minute long grand mal seizure (tonic clonic). After EEG's, MRI's and other testing, everything came back normal so the neurologist chalked it up to being the "one seizure" that every person is allowed to have in their lifetime. So crazy to think about huh, the fact that we all get a free seizure in our life?!
January seemed pretty normal with no signs of seizures and then February came. Henry's mom started seeing some random head drops from Henry (you know the kind....it's like when you are sitting in a meeting and your head nods real quick as you doze off and then you quickly wake yourself back up, It only lasts for a second and if you blink you could miss it). These would happen every now and then so it was hard to understand exactly what it was or record them. Finally after catching a few on video and sending them to the neurologist, Henry was admitted to Barbara Bush for an overnight EEG.
On March 10, 2021 Henry was diagnosed with a rare form of epilepsy, Myoclonic Atonic Epilepsy or also known as Doose Syndrome. A person with MAE can have multiple type of seizures. Henry was experiencing the head drops (myoclonic atonic) and also grand mal seizures (now called tonic clonics). From March until present day Henry has been down to Boston Children's Hospital where he was put onto the ketogenic diet and has been experimenting with a number of medications to find the right formula to help stop his seizures.
Every day Henry and his family fight against this epilepsy battle! As the crusade continues they hope to be able to turn this battle into something good! They hope to raise awareness of the second most common diagnosis of people and also help support those researching and finding ways to win this crusade!
Enlightening fact:
one in every 26 people have epilepsy.
Join us on Sunday November 5th for a 5k run, one mile walk, kids fun run, and motorcycle ride at Biddeford Middle School - 25 Tiger Lane, Biddeford, Maine 04005
Start times and pricing
10:00am Kids fun run ($10)
10:30am Motorcycle Ride ($25)
10:35am 5k run ($30)
10:35am 1 mile walk ($20)
Registration Link: CLICK HERE
or copy and paste in your browser: https://runsignup.com/Race/ME/Biddeford/HenrysCrusadeagainstEpilepsy
Race day registration is cash only and the following price changes:
5k $35
Walk $25
Kids fun run $15
Motorcycle ride $30
Those who register before October 12th will have a choice of a winter hat or cinch bag. Anyone registering after October 12th, will be available on a first come first serve basis the day of the race.
This year the proceeds will go to the New England Epilepsy Foundation and Little Angels Service Dogs! Anyone wishing to make a donation directly to Epilepsy Foundation of New England please use this link:
https://www.classy.org/give/421456/#!/donation/checkout
Anyone looking to make a donation directly to Little Angels Service Dogs please use this link: